Beta thalassemia major and health related quality of life.pdf

Beta thalassemia major and health related quality of life

Kantamneni Vidya

Optimal medical management has reduced the difficulties faced by thalassaemics, the psychosocial problems faced by them are now of primary importance. Beta-Thalassaemia challenges the individual at physical , social , emotional, cognitive levels and disrupts the quality of life. Its frequent and complex treatment might also lead to financial burden for the individual and his/her family. Presence of chronic disease like thalassemia places tremendous psychosocial burden on the patient and family. Hence assessment of quality of life in children is important. If they survive illness, children not only have longer lives to lead compared to adults, but they are less able to voice their concerns and are more vulnerable than adults. Proper intervention strategies can be implemented if appropriate data regarding psychosocial life aspects is available.

Prospective Assessment of Health-Related … 27.09.2010 · Although hematopoietic stem cell transplantation (HSCT) has been widely used to treat pediatric patients with beta-thalassemia major, evidence showing whether this treatment improves health-related quality of life (HRQoL) is lacking. We used child-self and parent-proxy reports to prospectively evaluate HRQoL in 28 children with beta-thalassemia from Middle Eastern countries who …

3659393754 ISBN
Englisch SPRACHE
Beta thalassemia major and health related quality of life.pdf


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Sofia Voigt

(2008). Fucharoen S: A scoring system for the classification of beta-thalassemia/Hb E disease severity. (2006). GL: Health related quality of life in Malaysian children with thalassaemia. Health and Quality of Life Outcomes (2009). Haberal M: Quality of life is not related with liver disease severity but with anemia, malnutrition and depression

Matteo Müller

Quality of Life Inventory (PedsQL). Children and adolescents with beta-thalassemia major who attended the Day Care Unit at King Abdulaziz University Hospital, Jeddah, Saudi Arabia from October 2012 to February 2013 were surveyed. The questions highlighted 4 health status scales, namely physical Influence of Working Memory on Academic …

Noel Schulze

30 Aug 2014 ... Abstract: Mental health and health related quality of life is commonly affected ... Mental health and quality of life in thalassemia major and their ...

Jason Lehmann

27 Sep 2010 ... Although hematopoietic stem cell transplantation (HSCT) has been widely used to treat pediatric patients with beta-thalassemia major, ...

Jessica Kohmann

People with transfusion-dependent beta-thalassemia (TDT) must adhere to a lifelong regimen of red blood cell (RBC) transfusions to survive and concomitant iron chelation to manage the iron overload caused by chronic transfusions. 5 A lifetime of transfusions compounded by treatment-related complications can be physically and psychologically demanding for TDT patients and their caregivers The Effect of Orem Self-care Model on Health …